Sorry it’s been so long since we have done an update. A lot has happened and we are just now able to sit and put it all into words. A little over a week ago, Bryan had surgery on the Achilles tendons on both his feet to correct the drop foot he had. The casts were taken off Thursday morning and he should now be able to put his feet flat when his therapists stand him. We shared with you that we had a surprise birthday party for him. Despite all the people and the excitement, when asked, Bryan doesn’t remember, even when we asked him the day after. The biggest thing that has happened is Bryan was transferred. He was moved Thursday to a facility with aggressive therapy that will help him become as independent as possible. He shares an apartment with 2 other TBI patients and has someone with him at all times helping him. He still needs someone to transfer him to and from his chair, dress him, make his meals, etc. Unfortunately there are no rehab places fitting for Bryan close to home. Being so far away, the move was tough. We think the long drive, combined with being in an unfamiliar place set Bryan back a bit, which we suppose is to be expected. He hasn’t been sleeping well since he got to the facility, barely has an appetite and at one point he said he was scared. All we can do is hug him, tell him he isn’t alone and try not to cry in front of him. We have worked out a schedule so that at least one of us is with him at all times. Ann took a leave of absence from work, which will be tough financially but none of us would have it any other way. Like we have this past year, we will make it work.
We have to say a huge thank you to everyone at Santa Clara Valley Medical Center, where Bry had been since October. From the doctors, nurses, therapists, his coaches (sitters), the people in the cafeteria and the janitorial staff…they helped us get through being at a hospital daily. We also know that Bryan was very fond of all of them as well. Please keep our family, especially Bryan, in your prayers during this transition.
From another of Bryan’s favorite bands, we picked this song because, for the past 11 months, nothing else mattered but Bryan. We have learned we also need to live our lives as normal as possible, but this is our new normal. Not really knowing what to expect. “Trust I seek and I find in you, every day for us something new. Open mind for a different view, and nothing else matters.”